News & Updates

Sharing our progress and impact

Stay informed about our fundraising achievements, events, research developments, and foundation milestones.

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All Updates

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Research & Development Updates

As we begin funding research projects, we'll share updates about breakthrough studies, grant recipients, and scientific progress in rare autoimmune disease treatment.

Coming soon

Want to share your story?

If you've been impacted by rare disease or want to share how you're supporting our mission, we'd love to feature your story.

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